Pain Assessment in Advanced Dementia (PAINAD)

Victoria Warden, Ann C. Hurley, Ladislav Volicer · 2003

Five observed behaviours — breathing, vocalization, facial expression, body language and consolability — for rating pain in people who cannot report it.

When someone cannot tell you they are in pain, you have to read it off their behaviour. PAINAD is the most widely used tool for doing that in advanced dementia: five behaviours, each 0 to 2, totalling 0 to 10. It is short enough to be used repeatedly and specific enough to be trainable, which is why it turns up in nursing-home and palliative protocols across the US, the UK and Australia.

Why it belongs in a video library. PAINAD is rated over an observation window, not a moment — the tool asks you to observe the person both at rest and during activity or movement. A recording is the ideal medium for that: you can rate the same window twice, compare raters on identical footage, and show the segment behind a score. Tag the interval you observed rather than the whole file.

Two items you can partly hear. Negative vocalization (moaning, crying, troubled calling out) and noisy laboured breathing are audible as well as visible, so they carry over usefully to audio-only recordings. Facial expression, body language and consolability need the picture.

Consolability is about the response to an attempt. You cannot rate it from footage in which nobody tries to console the person. If no consoling attempt occurs in your window, say so in the rationale rather than defaulting to 0 — an untested item scored 0 quietly deflates the total.

A caution about totals. The authors note the score reflects presence of pain-related behaviour, and there is still no agreed rule for turning a number into a treatment decision. Severity bands circulating online are not part of the published tool. Report the total, keep the item scores, and define your own thresholds in your protocol if you need them.

Domains (5)

Breathing Independent of VocalizationPBR

Laboured, noisy or hyperventilating breathing, judged apart from any vocal sounds.

Curated skill
Negative VocalizationPVO

Moaning, groaning, troubled calling out, crying, or speech with a negative or disapproving quality.

Curated skill
Facial ExpressionPFE

Sad, frightened or frowning face, up to overt facial grimacing.

Curated skill
Body LanguagePBL

Tension, distressed pacing and fidgeting, up to rigidity, clenched fists, knees pulled up, pushing away or striking out.

Curated skill
ConsolabilityPCO

How the person responds when someone tries to console them by voice or touch. Requires an attempt to be visible.

Curated skill
Warden V, Hurley AC, Volicer L. Development and psychometric evaluation of the Pain Assessment in Advanced Dementia (PAINAD) scale. J Am Med Dir Assoc. 2003;4(1):9-15. doi:10.1097/01.JAM.0000043422.31640.F7

Developed by US Department of Veterans Affairs researchers (Bedford VA GRECC) and therefore in the public domain; free to use with attribution to the authors. Item names and behavioural anchors follow the tool as openly distributed by geriatricpain.org (University of Iowa). Two printing lineages exist with minor punctuation differences (the 2003 original and the current revision) — cite Warden, Hurley & Volicer 2003.